It has been 6 weeks since I was last in the hospital. I had less than 2% Leuk remaining. I stayed in the hospital for 9 nights. I started Blincyto, which is administered by IV 24/7. After my inpatient stay, I was released with a pump to keep the infusion going around the clock for 19 more days.
My donor has been great the last couple of months. He has done everything asked of him. Unfortunately, last week I received a message from the transplant team. My donor is no longer available. We didn’t receive any additional information about how long he was unavailable or if he would ever be available.
The transplant team scrambled to contact my backup donor. It was a very long 2 days before I received the call. The second string donor agreed to donate! I continued on to get a bone marrow biopsy and lumbar puncture. The transplant schedule is only delayed by 1 day.
My biopsy showed no cancer in the marrow!
I met with my oncologist this morning. My biopsy showed no cancer in the marrow! Blood counts are good and I am scheduled to get another line put in my chest in the morning. This will allow a higher flow, which is necessary for the transplant.
The second stringer tested positive for an antibody. I cannot accept his cells if the test is correct. The blood is currently being retested and we should hear the results tomorrow. The transplant team and oncologists are moving full speed ahead with the transplant, so I really hope the test comes back negative.
My 5-year survivability dropped a little, but my odds of living through the transplant are higher than I expected. My doctor said I have about a 40% chance of beating Leuk. She said I have greater than a 70% chance of living through the transplant.